Comments on vedrafamily: Video *edited

Saw your site & was doing a search on pediatri...

2010-06-17T21:17:02.945-07:00

Saw your site & was doing a search on pediatric syndromes--Have you seen the University of Utah's site on BridgeMar Syndrome? That is, if you are still looking for a name for what's going on. Ellie may not have that but they may be able to give you some more direction.

Em, Thanks for sharing the video. It is really ex...

2010-05-19T18:19:38.375-07:00

Em,
Thanks for sharing the video. It is really exciting to hear Ellie talking. I love her beautiful toothy smile and her strong personality.
Hugs,
Betsy

Is this another lame attempt at having me sign up ...

2010-05-14T13:11:51.416-07:00

Is this another lame attempt at having me sign up for Facebook? Sorry,won't work. I get to hear Ellie in person.
Mom